Cystic Fibrosis

 

I have the three most wonderful children in the world.

 

A bold statement maybe, but true!

Emma my eldest is the youngest senior manager in her field in the UK.

My Son Phil should turn pro at snooker, and my youngest outrageously talented and beautiful daughter Charlotte has an IQ that is off the wall and will (please God) qualify as a doctor next year.

 

However, there is a blight on our lives

 

Charlotte has CF (Cystic Fibrosis).

 

I won't go into detail into what she has go through everyday, but suffice to say, it's not nice, not nice at all. In fact, it breaks my heart.

 

Here are a few words about CF

 

The Cystic Fibrosis Trust is the UKs only national charity dealing with all aspects of Cystic Fibrosis.

 

It funds research to treat the symptoms of CF and to find an effective treatment. It also aims to ensure appropriate healthcare for those with Cystic Fibrosis and provides information, advice and support to people with CF and their families across the UK.

Cystic Fibrosis is one of the most common, life-threatening inherited diseases in the UK. It affects over 8,500 people and 1 in 25 of us carries the faulty gene that causes Cystic Fibrosis. If two carriers start a family, each child has a 1 in 4 chance of having Cystic Fibrosis.

Cystic Fibrosis affects the internal organs, especially the lungs and digestive system, by clogging them with thick, sticky mucus making it hard to breathe and to digest food.

People with Cystic Fibrosis have to endure a rigorous daily treatment regime including physiotherapy to clear the chest, inhaled and injected drugs to thin the mucus and fight infections and dozens of enzyme pills to help digest food.

Each week, five babies are born with CF and sadly, each week three young lives are lost. Around half of those with CF can expect to live over 38 years, but a baby born today can expect to live longer.

Each year we invest around £4 million in gene therapy research and around £800,000 in symptom control, infection, transplant and other research. We also spend around £1 million improving the care of those with CF and around £1 million on information, advice and support.

None of this would be possible without the support of the CF community and the generosity of the public.

 

SO, IF YOU CAN SPARE A COUPLE OF QUID TO HELP SAVE LIVES, NOT RAIN FORESTS, NOT WHALES,
NOT JAGUARS, NOT STUPID FRIGGING DOGS THAT CAN IRON, PLEASE READ ON.

Fat bloke on his bike, riding over finishing line in Hove

 

Please help by visiting http://uk.virginmoneygiving.com/dannyokane as I am attempting to raise funds and awareness for CF, by taking part in a bike ride.

 

Then, you will be able to sleep peacefully in your bed at night knowing that you are a lovely, generous, warm hearted person, helping to save lives, and at the same time getting this fat, wheezy, grumpy old sod out of bed at the crack of dawn every bloody morning, trying to get fit enough to ride his bike, whilst looking like "the only gay in the village" on two wheels, pounding the mean streets of Sidcup.

At the same time knowing I will be taking abuse from the crackheads and low lifes of Kent, who now seem to line the streets, simply for the purpose of hurling abuse at me, and cacking themselves laughing.

 

To follow my progress please visit http://www.easypeasyuk.com/blog/category/bike-ride-for-cystic-fibrosis/

 

Thank you for your time (and money)

 

Danny O'Kane